Baby Sebastian Symonds

Living Your Best Dash

Most of us are familiar with the phrase, “Life is short”, and some people know this all too well from unfortunately experiencing the loss of a loved one. Edwina and Anthony Symonds had to live through this harsh reality when their baby boy Sebastian passed away. For any parent, losing a child is something they never expect to live through. All parents want is to see their children grow up and lead healthy, happy lives. They want to pass on their legacy through their children and their grandchildren. After Sebastian passed away, Edwina and Anthony knew that they would still be able to do this with their new baby on the way. They honored Sebastian’s memory with their new son, and he will grow up learning how to fully embrace his dash.

Seb’s Story

Sebastian Symonds was born on September 23, 2017, and was only 311 days old when he sadly passed away. Sebastian’s birth & first few months of life were perfectly normal. It wasn’t until he was six months that Sebastian, or Seb, was diagnosed with a rare form of epilepsy. With little medical research on this condition, his death came as a complete shock to his family and the medical community as a whole.

Since Seb’s brain died before the rest of his organs, he was uniquely able to become an organ donor. Even though Sebastian passed on, he was able to help others live. His mother, Edwina, said, “We took solace in knowing the pain we felt that day would have been proportionate to another family’s happiness.” Baby Sebastian died as a hero, and his short life was lived in the best way it possibly could have been.

make today count

Since Seb’s brain died before the rest of his organs, he was uniquely able to become an organ donor. Even though Sebastian passed on, he was able to help others live. His mother, Edwina, said, “We took solace in knowing the pain we felt that day would have been proportionate to another family’s happiness.” Baby Sebastian died as a hero, and his short life was lived in the best way it possibly could have been.

A Boy Named Dash

Edwina was familiar with The Dash Poem from reading it at her father’s funeral 12 years prior. The poem was once again read at Seb’s funeral.
While Edwina was 17 weeks pregnant with her second son at the funeral, it wasn’t until an ultrasound appointment that Edwina and her husband, Anthony, had a realization. Dash would make the perfect name for their new baby boy, in honor of the short but meaningful life that Seb lived.

Baby Dash Symonds was born on January 12, 2019. He will never meet his big brother, but he will grow up learning about how Seb’s short life was full of love, laughter, and kindness. Edwina said, “Sebby loved the simple things—the trees blowing in the breeze, the touch of different materials on his skin, water from his cup. If we remember to notice the small things each day, our dash will be so much more fulfilling”.

make today count

Live your Dash to the Fullest

In this short life, we need to remember what is truly important. So many of us waste time worrying about things that don’t truly matter, and we forget to enjoy what we have. It’s important to spend time with our loved ones, and to value each and every experience we have in this life. You never know what day could be your last. Let the short life of Sebastian Symonds be a reminder to each of us: we need to make the most of each and every day, and live our lives to the fullest, just like Seb did. Live Your Dash.

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